Baaware is an organization that was put together to raise awareness and research funding for a disease called Biliary Atresia. Biliary atresia, a disease unheard of by most, was brought to my attention while listening to The Dana Show, hosted by Dana Loesch, whose cousin has a little boy with Biliary Atresia.
Biliary atresia is an idiopathic disease which begins shortly after birth. It is an inflammation and blockage of the bile ducts–tiny tubes–in the liver that ultimately lead to liver scarring and cirrhosis. Approximately 1 out of every 15,000 babies are affected by Biliary Atresia.
As stated on baaware.org:
It is our mission to help find a cause and a cure for this disease. We promote Biliary Atresia awareness and the importance of organ donation. We support those battling Biliary Atresia. We raise funds which go directly to the research of Biliary Atresia at St. Louis Children’s Hospital and to needy families who are affected by this disease.
This Friday, in St. Louis, MO, is Baaware’s 2nd annual “Art for the Cure,” an event to raise research funding and awareness for this disease at St. Louis Children’s Hospital. If you live in the St. Louis area, Dana Loesch will be the MC for the event, which is from 7-11pm and costs $25 to attend (includes 2 drinks and hor d’ourvres). You can find more information here.
Future Voices of America encourages you to check out this charity event if you live in the St. Louis area. It is a great cause, and the money they raise will be used to help the individuals and families dealing with Biliary Atresia, as well as to help fund research to find a cure for the disease that is the number one cause of liver transplants in children. Before this organization was put together, no money was being invested in researching the cause of or cure for Biliary Atresia. If you’re looking for a good charity to get involved with, this is a great one.